There is more to treatment than eradicating the disease. It is also about treating people - people who have families, friends, jobs and dreams for their future.
Below are links we have compiled for your use. We are always interested in hearing about your favorite sites, so please e-mail us if there is a link you would like us to consider listing!
ADVOCACY, NEWS AND CURRENT ISSUES: The Children's Cause is a great place to learn more about national policy issues that affect research, health care, and follow-up services for cancer survivors. Reuters Health provides consumer-friendly news on health issues. You can either click on "Health eLine" on the left menu bar to see the most recent health news, or click "search" at the top of the menu bar to search for specific terms. Journal articles summarized by OncoLink
GENERAL AND "GATEWAY" WEBSITES: American Cancer Society: This site has a wealth of information on specific conditions, statistics, treatment options, medical updates, and so forth. Association of Cancer Online Resources: This site has a great deal of information on specific diseases, clinical, trials, mailing lists, support resources, etc. Again, links to specific diseases are listed below, although we encourage you to look over the site on your own. Brave Kids: Online resource for children with chronic or life-threatening illnesses and disabilities. Users can search by resource type (such as financial assistance, camps, support groups) and by disease or condition. Cancer Profiler: The Cancer Profiler is a tool to help you better understand potential treatment options for leukemia. Users will need to register with the site (no charge) to access the tool, and take a short (15-20 minute) survey in order to get their potential treatment information. There is also a very helpful glossary. CancerSource has extensive information for patients, and an excellent Drug Guide. Candlelighters Childhood Cancer Foundation: A great resource for families with a child affected by cancer. Treatment, support, advocacy, legislative updates, and a great deal of publications can be found here, as well as links to websites specifically geared to kids, teens, and siblings. MedlinePlus is a service of the U.S. National Library of Medicine and the National Institutes of Health. This wonderful site includes information on various health topics, an index of prescription and over-the-counter medications, a medical encyclopedia, dictionary, news, directories, and other resources. National Cancer Institute: This is an extremely well-organized site with information on conditions, treatment, prevention, causes, support and resources, clinical trials and literature, and a comprehensive dictionary. National Children's Cancer Society: Again, this website has a huge variety of resources and assistance to offer. This page in particular has a listing of cancer resources such as chat rooms / message boards, clinical trials, financial assistance, survivorship and health insurance and legal information. Outlook: A wonderful resource for "life beyond childhood cancer". Primary topics include insurance and financial issues, health issues and concerns, school and job issues, and there is a very large bank of resources. People Living With Cancer is the patient information website for the American Society of Clinical Oncology (ASCO). Here you will find coping resources, clinical trial information, strategies for managing side effects, "Ask the ASCO Expert" series, the latest cancer news, and much more. St. Jude Children's Research Hospital: This is the gateway to the leukemia, lymphoma and myelodysplastic information at St. Jude Children's Research Hospital.
SPECIFIC RESOURCES FOR YOUNG ADULTS WITH CANCER: Beyond the Cure is sponsored by the National Children's Cancer society, and has information about the late effects of cancer treatment for those diagnosed with cancer as children or teenagers. Planet Cancer sponsors retreats for 25-40 year-olds with cancer, and also offers a clearinghouse for support groups, camps and informal gatherings geared toward young adults with cancer. Teens Living With Cancer is a fantastic website sponsored by Melissa's Living Legacy Foundation and Children's Oncology Group. Group Loop is an online support group for teenagers with cancer. Fertile Hope helps cancer patients deal with fertility issues associated with cancer treatment. Ulman Cancer Fund for Young Adults offers support, education, and resources, including a free guide book for young adults facing cancer.
